Chloe latest Cardiology Appointment
Chloe had her biweekly cardiology appointment on Friday. This appointment was different though. She had her usual Echo, EKG, pulse ox check, height and weight. But this time, her cardiologist said "Has the surgical team called you yet?"....nope? "If you do not hear from them by monday morning, call the surgeon on tuesday. Here is his personal number."
On wednesday, the surgery team discussed Chloes case. Her full heart repair will be soon! We all want her to have the heart repair before cold and flu season or if she gets sick, it pushes the surgery back another 6 weeks! So this thursday, Chloe and I meet with her heart surgeon. The nerves have officially begun. Yes she has already had an open heart surgery and a few heart catheterizations, but the full repair is much more intense. Much more involved. She most likely will need to be put on a heart-lung bypass machine. I pray that the weight that she has been gaining will help her be strong! As much as I want this surgery over with so she can heal and our family can become a little bit more "normal" I don't want her to go through this. I wish it was me instead. A tiny, innocent baby doesn't deserve all that she's been through and will have to continue to go through. She doesn't know what is coming. Right now she is laying next to me, cooing, smiling and playing with her toy. I want to hold onto this moment forever.
Chloe had her biweekly cardiology appointment on Friday. This appointment was different though. She had her usual Echo, EKG, pulse ox check, height and weight. But this time, her cardiologist said "Has the surgical team called you yet?"....nope? "If you do not hear from them by monday morning, call the surgeon on tuesday. Here is his personal number."
On wednesday, the surgery team discussed Chloes case. Her full heart repair will be soon! We all want her to have the heart repair before cold and flu season or if she gets sick, it pushes the surgery back another 6 weeks! So this thursday, Chloe and I meet with her heart surgeon. The nerves have officially begun. Yes she has already had an open heart surgery and a few heart catheterizations, but the full repair is much more intense. Much more involved. She most likely will need to be put on a heart-lung bypass machine. I pray that the weight that she has been gaining will help her be strong! As much as I want this surgery over with so she can heal and our family can become a little bit more "normal" I don't want her to go through this. I wish it was me instead. A tiny, innocent baby doesn't deserve all that she's been through and will have to continue to go through. She doesn't know what is coming. Right now she is laying next to me, cooing, smiling and playing with her toy. I want to hold onto this moment forever.
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