Welcome to our blog! Here you will find all of the updates and adorable pictures of Chloe ❤️. I started this blog for family, friends or anyone who can relate. Enjoy!


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Surgery Cancelled Well, bad news. Today Chloe and I got to Post Op and we received some news. Her surgery has been cancelled. The worst part is we were told this after she got labs and testing done. Her surgery was cancelled because of a big emergency case. I am trying to be positive because at least Chloe is stable enough that its ok and I am grateful that she wasn't the big emergency case. Still, this is upsetting because this is the 4th time her surgery has been cancelled. Kody already called of work and we got everything all prepared. I should be getting a call tomorrow with a new date. I am also worried that she will get sick again as it is cold and flu season, and that will delay her surgery even further. I appreciate all the prayers and please keep praying because she should be having her surgery soon still. Her surgeon told me today that she is a priority and that he wants her to have her surgery sooner rather than later so that is good. Im p...
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Chloe's recovery journey Chloe is making me so proud with how well she is recovering from this monster surgery. I bet shes doing better than I would ha ha. I just want to document her progress so one day when shes older and about to go through another surgery, I can show her this blog and she will know that even from the start, she was a strong little lady! I will never have the words to explain all of the emotions we are going through as a family on this heart journey.  Its scary, amazing, strong, emotional, and more.   Day 1: Chloe was able to be exubated right after surgery. She was awake but drifting off a lot. Very sedated from narcotics and the anesthesia still in her system. She was not fed at all today as eating too soon can cause problems. She would probably try to throw up which can be dangerous with her being on the vent and so sedated. I don't think she knows who we are or whats going on at all. The important thing is she successfully made it through open hear...
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Feeding Chloe Update  I just wanted to post an update on feeding chloe.  Ever since her heart surgery, she has been eating an entire jar of baby food each sitting!! We feed her 1-2 times a day right now. She's finishing that jar in 20 minutes or less with no puking or choking! This is such an improvement and it gives me hope especially when we resume feeding therapy. As for taking a bottle, no progress but she's 8 months old so I'm not too worried. We will be working with a sippy cup soon though .   Another update is the tube feedings. Before the surgery we we're slowly making our way to bolus feeds but we did put the compressions on hold just in case she didn't tolerate it.  3 days ago I compressed her feeds again and she's tolerating it beautifully .Now she's at a higher rate and gets 6 hours off the tube instead of 4! My plan is to take her off the tube 3 times a day for 2 hours. Before connecting her back to the tube I will first feed her by mouth. If...
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